The Oesophageal Patients Association is an independent registered charity formed in 1985 when a few former oesophageal cancer patients met and found tremendous reassurance in sharing experiences. Since then, we have helped over 26,000 patients and carers. The members of the Association are all patients who have experienced oesophageal or gastric difficulties. We have prepared medically approved booklets and fact sheets on the problems, which we can talk about at first hand, understanding the fears that can be generated, the pains that can be suffered and the effects on the digestive system that can be experienced.
Informal meetings for patients and carers (family or friends) are regularly held at regional centres around the UK. Problems are aired and suggestions for overcoming them are exchanged. The essential aim is to enable new patients to meet and talk to former patients who have recovered, are back to work if not retired, and lead relatively normal lives.