WELCOME TO THE OPA SUPPORT GROUP FOR NOTTINGHAM

Welcome to the OPA support group for Nottingham and the surrounding area. We welcome anyone diagnosed with, recovering from, or having recovered from oesophageal or stomach cancer. We also welcome those facing gastric difficulties or individuals experiencing difficulty swallowing or eating food. Whatever your circumstances, we are here to offer support, and we hope you will consider joining us at our next group meeting. We meet monthly on a drop-in basis on the third Thursday of every month between 13:00 - 15:00. Details of our meetings are updated here regularly.



Contact Co-ordinator Robert Turner

Tel: 0115 914 7018

Email: drbobturner@gmx.co.uk

Upcoming Sessions

Date Time                  Venue Features

Thursday 18th October 2018

13:00 - 15:00 Maggies, City Hospital Campus, Gate 3, Hucknall Road, Nottingham, NG5 1PH Speaker - Psychologist from the Maggie's Centre 

Thursday 15th November 2018

13:00 - 15:00 Maggies, City Hospital Campus, Gate 3, Hucknall Road, Nottingham, NG5 1PH  

Thursday 20th December 2018

13:00 - 15:00 Maggies, City Hospital Campus, Gate 3, Hucknall Road, Nottingham, NG5 1PH  

Thursday 17th January 2019

13:00 - 15:00 Maggies, City Hospital Campus, Gate 3, Hucknall Road, Nottingham, NG5 1PH

Thursday 21st February 2019 

13:00 - 15:00 Maggies, City Hospital Campus, Gate 3, Hucknall Road, Nottingham, NG5 1PH

Thursday 21st March 2019

13:00 - 15:00 Maggies, City Hospital Campus, Gate 3, Hucknall Road, Nottingham, NG5 1PH

Thursday 18th April 2019

13:00 - 15:00 Maggies, City Hospital Campus, Gate 3, Hucknall Road, Nottingham, NG5 1PH

Thursday 16th May 2019

13:00 - 15:00 Maggies, City Hospital Campus, Gate 3, Hucknall Road, Nottingham, NG5 1PH

Thursday 20th June 2019

13:00 - 15:00 Maggies, City Hospital Campus, Gate 3, Hucknall Road, Nottingham, NG5 1PH

Thursday 18th July 2019

13:00 - 15:00 Maggies, City Hospital Campus, Gate 3, Hucknall Road, Nottingham, NG5 1PH

Thursday 15th August 2019

13:00 - 15:00 Maggies, City Hospital Campus, Gate 3, Hucknall Road, Nottingham, NG5 1PH

Thursday 19th September 2019

13:00 - 15:00 Maggies, City Hospital Campus, Gate 3, Hucknall Road, Nottingham, NG5 1PH

Thursday 17th October 2019

13:00 - 15:00 Maggies, City Hospital Campus, Gate 3, Hucknall Road, Nottingham, NG5 1PH

Thursday 21st November 2019

13:00 - 15:00 Maggies, City Hospital Campus, Gate 3, Hucknall Road, Nottingham, NG5 1PH

Thursday 19th December 2019

13:00 - 15:00 Maggies, City Hospital Campus, Gate 3, Hucknall Road, Nottingham, NG5 1PH



Meeting Venue

Our meetings are held at the Maggies Centre on the Nottingham City Hospital Campus:

If you would like to view the Maggies Centre website, please click below:

 https://www.maggiescentres.org/our-centres/maggies-nottingham/

 

The unique architecture of the Maggie's Centre really make it stand out from a distance!

 'Its a shelter, a place where I can share and be myself'

City Hospital Campus
Gate 3
Hucknall Road
Nottingham
NG5 1PH

 

How to find the Maggie's Centre

By Car

The Maggie’s Centre is located inside Gate 3 on Hucknall Road, just off the Valley Road. There are several car parks around but these are often full. The Yellow car park which is situated at Gate 5 on Edwards Lane is around a 5 minute walk down the South Road. There is a pick up/drop off point close to the centre entrance which also acts as a disabled parking bay (2 spaces).

By Public Transport

Several NCT bus routes run to the City Hospital and subsequently the Maggie’s Centre. The Brown Line numbers 15, 16, 16c and 17 on the Hucknall Road side and the Purple Line numbers 87, 88 and 89 at the Edwards Lane end.

Trent Barton also have a number of buses that stop at the hospital namely the Rainbow 3, 3A, 3B and 3C.

The Medilink free bus service between the Queens Medical Centre and the City Hospital Camp is useful for those travelling from the Southside of the City. It also stops at the tram stop at Wilkinson Street so is good for those coming from out of town by tram. The first Medilink bus stop in the hospital campus is approx 100 yards from Maggie’s.

 


 

About us

Who we are
The Nottingham OPA group is made up of a mixture of current and former patients, their carers and close family members and friends. Patients may be at any stage of treatment, from an individual who has only been diagnosed recently through to someone who underwent surgery several years (or indeed decades) ago. Our group members (both male and female) come from a wide range of backgrounds and occupations, and all have very different stories to tell. We all have one thing in common however, and that is we all aim to help and support each other, very much employing the ethos of the OPA - 'former patients helping current patients'.

Our aim
We aim to help patients (and their families) pre and post treatment by offering support and guidance from those who have been in a similar situation themselves. We also aim to inform GPs concerning the symptoms of the disease and the nature of postoperative care required. In addition to the national objectives of the OPA, we also hope to conduct a number of regional awareness initiatives, plans for which will be discussed at future meetings.

Meeting Structure
Our meetings are very informal and currently take place at the Maggies Centre on the city hospital campus in Nottingham. Each meeting typically lasts for 2 hours and gives attendees an opportunity to hear the latest news, share their experiences, and learn from others. We have a regular programme of speakers - please see above. The meetings are led by two health professionals: Kate Martin, the centre head at Maggies; and Kath Barnard, Nottingham City Hospital's Upper GI Nurse. There is no obligation for anyone to speak publicly (your level of participation is completely up to you). Both before and after the meetings, you are welcome to enjoy a drink downstairs in the Maggie's Centre meeting area and chat further to other patients or carers.

Can anyone attend?
Yes absolutely. We welcome patients from across the East Midlands. We also welcome visitors from further afield, including representatives from other OPA support groups. You do not have to be a patient to attend (you may be a partner, carer, friend or close family member for example). In fact we positively encourage non-patients to attend. Feedback from attendees suggests that carers (usually spouses or partners) looking after their loved ones can often learn a great deal from other carers (answers to questions such as "Is this symptom normal?" for example). We would also encourage GPs and medical professionals of all levels to attend.

How much does it cost?
Our meetings are absolutely free to attend and there are no 'membership' fees, although we do ask attendees for a small (voluntary) donation to cover the cost of tea/coffee & biscuits and venue hire (where applicable). Any additional leisure activities organised by the group may incur an additional charge, however we will notify attendees of any costs prior to organising an event, and participation is optional.

What if I don't feel well enough to attend?
As former patients, we fully understand the difficulties you may be undergoing as a patient... be they physical, psychological or both. Whilst you might not feel like talking about cancer, wherever possible, we would encourage you to attend, as we are confident you will find our meetings both supportive and informative. From gaining tips on treatments or diet, to knowing how to deal with some of the symptoms, you may be surprised at what you can learn by talking to another patient. You can also take comfort knowing that you are not going through the experience alone and that there are others who you can turn to for help, guidance and support. If you are too unwell to attend in person, please feel free to send someone else on your behalf (e.g spouse, friend, or family member).

 

How to contact us

Please contact Robert Turner on 0115 914 7018 or by email to drbobturner@gmx.co.uk                                       

Previous Meetings

If you miss a meeting or event, then you will find an update here including any handouts, or information provided on the day.

 

March 17th 2016

A couple of photo's from our March meeting, which was enjoyed by all who attended. 

     

 

November 29th 2014

Barbara Lawry was the guest speaker at our meeting on November 29th. Barbara gave an introduction to counselling; what it can offer the patient, carer and family members at any stage of the journey. Barbara has been trained in counselling since 1999, following a previous career in Nursing and Midwifery spanning 25 years! She has held various counselling positions, but now concentrates on her work at St Barnabas Hospice which she does as a volunteer.

A raffle took place, with a first price donated by the Great Gonerby Post Office.

Sunday November 30th 2013

Shiraz Haider, a senior pharmacist from Lincolnshire, spoke about all things pharmaceutical as they affect our patients.

Wollaton Walk

Another walk, this time in the July heatwave, around the grounds of Wollaton Park in Nottingham. A good turn out of nearly 30, some of whom are shown below, including Cathy Van Baalen Specialist Upper GI Nurse, whom we particularly thank for giving her time so generously. 

 

August 2013

During our August meeting; Upper GI Specialist Cancer Dietition Orla Hynes of the St Thomas Hospital, London gave an extremely informative talk which you can view again here Orla Hynes Talk

February 3rd 2013 - Swimarathon!!!

Our group has been helped financially over our two first years by the Rotary Club of Grantham's swimarathon, where hundreds of local people swim for an hour over a long weekend on a sponsored basis. At our last meeting several of our members said they wanted to give something back and so we had two teams swimming on Sunday morning February 3rd. Four patients, an Upper GI nurse and 7 "friends and family".  We raised over £1100!!

 

Useful Links

Cancer Research UK  http://www.cancerresearchuk.org/
NHS Choices http://www.nhs.uk/Conditions/Cancer-of-the-oesophagus/Pages/Treatment.aspx
Macmillan Cancer Support http://www.macmillan.org.uk
Wikipedia http://en.wikipedia.org/wiki/Esophagus

 

 Jigsaw Pieces with OPA logo

Feedback

We positively encourage feedback, and we always want to hear your suggestions on how we can make the support group better for you. If you would like to discuss a particular area then please do not hesitate to contact at enquiries@opa.org.uk or by telephone on 0121 704 9860.

Email Newsletter

Sign up to the OPA e-newsletter for the latest news updates via email.

Subscribe To Oesophageal Patients Association